That's the chant that we hear from Mac every Wednesday morning, and it is echoed silently by me, with "i wish'...Wednesday is the day that Mac has a shower and has his hair washed..whew..It is always such a chore as he is so fearful and rather weak...so getting in and out of the tub, sitting on the chair in the tub, and adjusting to the water - hot warm wow there he goes again, and the preposee is calling ...I'm back..he was yelling "this is the last time...." and apparently made some overtures as if he was going to hit poor Vedette...I can understand his feeling, and her's of course...I wish there was some other way to wash his hair...he is becoming more and more belligerent and aggressive in his refusals to have this and I'm becoming more and more shaky with the whole episodes...I wake up Wednesdays trying to be so 'up' and i make sure his coffee and breakfast are all ready and music on thats cheery...but poor Vedette, she goes through this with many people she works with every day, what a job.
Wow, now he's sitting looking nice and clean, with the most grumpy look on his face... this doesn't bode too well for Debbie - who will be here today - which is my respite day...yikes Will try to make life a little better for him, in a few minutes..with another cup of coffee..and a cookie, - wow just tried, his NO meant NO....
We had a great day at the Alzheimer's Cafe yesterday, and even though he had to go up and down staircases, his mood was so up...as we go step by step so carefully, he said, "let's try running" what a good laugh that gave us...Now if only i could think of something funny or happy, but think the best thing is to just let him have a little nap and enjoy the lovely music on CBC this morning, this too will pass..
We meet people at the Cafe with the big A. some just starting, they have such high hopes for the new meds that will be hopefully coming up soon to help..I can remember feeling that way too, seven years ago, when this all started...How sad for these bright and energetic people, as they see people like Mac, who can only walk with wakers or canes, shaky, not able to understand what's going on...and they can only hope that this will not be their future...
The people that work for the A. Society, are so helpful, cheery, and the trio from McGil music dept. were on hand to play flute, violin, and song..t'was lovely, but as I looked around the room, i thought how sad...two of my support group people were there, one whose mom had A. was so down, her mom had died...she said she needed to have to go to a Grief Support Counsellor...the other person, was saying her husband with his frontal lobe Alzheimers problem had just received another diagnosis...lukemia...as i write this, i wonder now how we could have been so able to laugh ...because we did, and we chatted so happily...makes me wonder but it was not - put on. We really did enjoy..and they did too...and the young people that support us, i hope they know how much it means to us, to have their interest, their research and their true caring..apparently many have gone through the A. problems with their grandparents...or with friends...parents etc. so they are trying.
Apparently the A. Society will have a new and bigger place for meetings and work, so this will be something to look forward to next year...as many people do not go to these meetings because of parking and distance. Improvements can be seen with all the $$$ raised by the walks, that cheers me as does the fact that there are new and better ideas and new meds...hopefully some will be able to be used by mac...better days ahead...we hope. so g'day
No comments:
Post a Comment