Monday, January 7, 2013 Who was that person today

Remembering who came who went, who was here and when were they here, part of Mac's bedtime routine, and so it goes.  Today he had a man who delivered a seat to make bathroom use easier, a walker to help him get around and I thought that may be the different person but he said, no - just who was that prson here today, I said, do you mean Helen, 'yes, that it, she is a very nice girl" , and so she is, and we are so lucky to have her.

 My respite person they call her and that is what she does for me, and for Mac she gives a good sense of security...she has been coming now for the second year, how good that is.  The same person is so important.  When i went to my support group, not one person there has someone to rely on regularly, seems the respite person changes, or there is a problem with how they get along.  We, appreciate our Helen, and as Mac says, she is a very nice girl.

We are also fortunate with our family, all who try to do their best to make our lives easier, but sometimes it does get a little hairy and theres no one here except...me...that was the problem when we woke up, first Mac could hardly get out of bed his arms were so sore and weak, then his legs started to tremble and he almost fell down the stairs.  Then he was afraid to get on the toilet, and in fact he was almost afraid to sit down.  So thankfully we have the amazing chair, that he adores and he sat there for his breakfast.  This chair lays him down, sits him up and then almost pushes him up to standing.  Helen calls it his electric chair, which it is.  So that's where he had brekkie.  Thankfully CLSC and social worker came through for me and the man came with his new equipment.

Later in the day he tried out the new toilet seat, with arms on each side.  When he got the hang of it and found that he could use the arms to push himself off, he sang out 'hallelujah',  don't know what Leonard Cohen would think of that, but I laughed out loud.  The only piece of equipment i forgot about was a thingie to help him get out of bed...but i guess that will come soon...These items are on loan, as we know that soon we will have to move mac to a safer environment...so getting used to this thought is hard, but again,  it's one day at a time and live in the moment.  A good day, a good moment so a good night...